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Have you or someone you love been diagnosed with Pheochromocytoma or Paraganglioma?
Pheochromocytoma can be treated and managed in about 90% of cases so it is important to be screened, diagnosed and treated early, especially of you have any of the signs & symptoms or have a family history of this rare tumor.
March Newsletter now published...
Check it out below or on the resources / links page!!!
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http://www.pheoparatroopers.org/newsletters/english/april_2012_newsletter.pdf
New Pheocromocytoma genes discovered!!!
It was announced at the 2011 International Symposium on Pheochromocytoma and Paraganglioma during September 2011, that two new genes named TMEM127 and MAX have been discovered by researchers.
We hope to have details of the ramifications of these discoveries soon but this means that more patients with metatstatic disease who have previously been diagnosed as sporadic may now have a genetic profile to fit their disease and improvements to their treatment can result.
If you have been diagnosed with pheochromocytoma or paraganglioma and particularly if the disease is metastatic, we strongly advise that you get genetically tested to allow optimal treatment of your own disease progression.
