About the Alliance
The Alliance website is a resource that helps both patients and physicians cut through the maze of information related to neuroendocrine diseases so they can make informed decisions for the treatment of pheochromocytoma and paraganglioma. The site provides information about some of the key research available from the world’s leading experts. The site also links to a number of patient and health care professional resources. The site also serves as a virtual support group for patients and their families, providing information and encouragement.
The Alliance is a nonprofit 501(c) 3 organization that was formed by a diversified board, parents and family members of patients with the disease, and concerned individuals. The Board shares a passion for unlocking the secrets of this rare and terrible disease and for raising consciousness among the medical community and the public concerning this dangerous condition.
Leading the Alliance is Tim Rothwell who has over 35 years of experience in the pharmaceutical industry. Tim's passion and focus is on "spreading the word" about pheochromocytoma and paraganglioma because knowledge leads to more involvement in the search for a cure.