Chairman's Report

"Looking back at my past three years as Chairman of the Pheo Para Alliance, I am heartened by our many accomplishments.  Looking ahead, I realize we still have much to accomplish.

Over the past year we have continued to grow the Board and supported research efforts dedicated to diagnosis, treatment and cure of this disease as well as outreach and educational activities.

We continue to work with international researchers and PRESSOR to develop a three to five year project to study specific chemotherapeutic agents to be used alone and in combination for treatment. We also continue to lay the groundwork to establish Centers of Excellence for Neuroendocrine Diseases nationally.

We have succeeded in having Pheochromocytoma recognized by the Department of Defense for grant consideration.

The Pheo Para Alliance Web Site, which was launched in 2008, continues to provide information and services to patients, their families, health care professionals, and the general public. We also provided funding for the start of the web site for the Pheo Para Troopers, a patient support and advocacy organization.

We had two very successful "Spreading the Word" Galas in New Jersey and Washington, DC. I want to express our sincere gratitude to our donors for their continued financial support . Their generous donations have made all of this possible.

In January 2011, Tim Rothwell took over as Chairman of the Alliance, needless to say the Alliance is in very good hands.   I am thankful that we have such a committed, talented, and supportive Board as we move forward to Spread the Word and find a cure for this disease."

Dr. Edward J. Kauffman