The mission of the Alliance is to fund Pheochromocytoma and Paraganglioma research and to support a greater understanding and awareness of these diseases through grants, education and advocacy in the US and worldwide.
Founded in 2007, the PheoPara Alliance is the original and longest standing, internationally recognized leader in advocacy and awareness regarding Pheochromocytoma and Paraganglioma. The PheoPara Alliance was founded as Pheo Alliance and has dedicated millions of dollars towards research, diagnosis, education, advocacy, and finding a cure for these diseases.
One of our primary goals in addition to raising money and funding research is to serve as a resource that helps both patients and physicians cut through the maze of information related to neuroendocrine diseases. We want patients and their families to be able to make informed decisions for the treatment of Pheochromocytoma and Paraganglioma. We fund key research on Pheochromocytoma and Paraganglioma and share information as it becomes available from the world’s leading experts. The website also provides links to a number of patient and health care professional resources.
The Alliance is a nonprofit 501(c) 3 organization that was formed by a diversified board made up of parents and family members of patients with these diseases, patients, and concerned individuals. The Board shares a passion for unlocking the secrets of this rare and terrible disease and for raising consciousness among the medical community and the public concerning these dangerous and often misdiagnosed conditions.